Monday, April 19, 2010

UW Autism Center

The next step on Harry's journey is to have him evaluated at UW Autism Center. The teachers and ourselves are noticing some behaviors with that may indicate Aspergas(sp?) or Autism Spectrum Disorder. We booked him in today and have our first appointment on the 5th of May. I am crossing my fingers for some answers!!

http://depts.washington.edu/uwautism/Bios/kelly.html

Some of the signs...
  • Fixation on belongings, thoughts, conversation
  • Phobia of germs, loud noises, bright lights, being breathed on
  • "Overreacts" when things don't go his way
  • Never sure what will set of depression/anxiety with him
  • Insecure and wanting to be accepted
  • Rituals, always needing to wear the same clothes
  • Still has a stuffed animal that needs to go everywhere and is "real"
  • Cries in front of peers if things don't go right
  • Inflexible, can not stand change from his routine or what he expects
  • Has to talk about what he wants too and not interested in others around him
  • Socially, does not relate to peers, does not participate in play or conversation
  • Very creative/imaginative, has a hard time distinguishing between this and reality
  • Always believes his way is the only way, will not listen or learn from others
  • Is often in a daze, will not make eye contact for more than a second
  • Does not understand simple commands and will need to be repeated
  • Is not really aware of his responsibilities and still waits for prompting
May 5th - 9:30am: Parent Intake (get there 15mins early+IEP)
May 11th- 1pm -3pm: Harry one on one
May 19th- 9:30am: Harry one on one
May 27th- 1pm: Parent feedback
June 24th- 1pm: Optional Parent feedback

Thursday, April 15, 2010

Didn't want to lose this cool link...lots of helpful stuff here!

http://specialchildren.about.com/od/specialeducation/Special_Education_Getting_the_Best_School_Experience.htm
While up at Harry's school volunteering yesterday. I spoke with Mrs Brummley in regards to his progress. They believe Harry is showing signs of Asperges and possible Autism spectrum. Well there's no surprise, I have been saying this for years. Even Children's hospital didn't believe me or take the time to see the signs with him!
Now it looks like we are back to square one! Lets go through the testing again! Only this time I am going through it as a burnt out mom, desperate for help! The small amount of hope I have left is for direction. And not just more closed doors!

Sunday, April 11, 2010

Weeks of falling!

It feels like it has been months since I have posted anything here. Could be because our life with Harry has been so overwhelming. Outbursts, depression, sadness and hopelessness. Not a lot has made him smile lately, I miss his laugh.
School work has been suffering, his friendships are tough and home life is stressful and full of opposition.

But today I had a break through!
After talking with another mom today about some problems she's been facing with her child. I got some wonderful insight into how to help Harry with a new perspective. She told me of some conversations she had had with her little guy and how something in him just clicked one day. It really got me thinking in how I talk to Harry, what expectations I verbally tell him. It gave me some hope to keep going and not give up.

I came home today and thought hard about how to help Harry with his schooling. We talked about school and what he likes. I also like to keep it positive and easy flowing. But today I thought I would best ask him why he doesn't like it? What would you make different about school? what would make it fun?
It turns out that fun is the word that school is lacking! He thinks "its boring and that its all work work work that's to hard, and no toys and no playing!" Said Harry.
He then asked if he could do school at home? Mommy "I want to do home school!" That statement alone, opened up a response that would help both him and me.

I told him that, I didn't think that would be possible. When I have tried helping you in the past, you don't want to listen or learn, you don't follow my direction and it always ends in tears when we try and just do homework! I know that seems a little blunt and some what harsh, but you don't want to beat around the bush when you are really trying to make a point that will somewhat serve as a wake up call.

It did the trick, he said straight away, "mommy I really want to try, I'll listen and do my work!" Great, lets do it! I didn't waste anytime, I thought if he is going to say it, then he needs to back it up with actions. So I gathered some work books and off we went to his bedroom, to work at his desk. It worked It worked!!!! OMG who was this boy? He sat at his desk, he wrote his name, he listened to instructions, he completed work and he enjoyed it!!!